This time it is "just" about the status epilepticus club. Segev has not been in SE for quite some time (early March) so it was high time I guess. He is with me at home and it isn't clear yet whether he will pull clear or that the holy trine of bronchiectal phlegm causing uncontrollable seizures which results in phlegm moving upward blocking his airways will deepen but I remain optimistic.
For now an intense regimen of inhalation and physical therapy, postural drainage, frequent suctioning, muco-dilaters and diastat are order of the day and minute by minute, hour by hour, the situation will unfold.
I had an hours worth of help this hectic morning as the preparations for transferring Segev from his mother was bogged down by his need for oxygen and diastat. After I treated him there with physio and the diastat his oxygen level was good enough to bring him here, then in the car he had another choking episode, bad enough that the portable suction couldn't handle the blockage which caused a tense moment. Once here the routine intensified and will continue to rotate between therapies and medication.
The one hitch is that the oldest is in the army and my daughter is in a one week bootcamp as preparation for the army so being in this situation alone is one where I have to remain calm and keep my wits about me.