I have to wonder sometimes at the audacity with which we are judged by others. Of course it happens to us each day and we are even guilty of it ourselves but nowhere can it be more alarming then when we feel our children’s very lives judged because they are severely disabled. As a parent providing round the clock care for my son for over fifteen years there are many constants in what has become our tiny, nearly hermetic life. Unfortunately judgment is one of them.
December 29, 2014
November 09, 2014
Each moment with Segev is special to me, though I find my mind wandering more often to fantasies of an easier life, mostly as I drive to house calls, trying to provide pain relief for others as physical therapist.
I feel gutted that these fantasies don’t include my son. I don’t dream of taking him to the park, to the beach or to visit a local ice cream parlor. When I fantasize about traveling, of going on a vacation, I don’t imagine taking him with me, to look at the sites, visit friends or family, as though i would be carefully watching his wonderment at the diversity of experiences to be had.