October 20, 2011

XL stands for extra large

Segev is down for the count...6...7...8...

The simple perpetration of violence on his person, by the return of a monstrous seizure long since not seen, like the blight of a wholly sadistic god, like the snap of the marauder's whip. It comes twice in the night. It levels him.
You have been weighed and you have been measured, and you have been seen fit to be trampled upon and smothered.

This of course comes at the close of several good days where, though  in the usual way tiring indeed, I can say Segev is as stable as he can be, as healthy as he can be. No, I didn't let my guard down and yet didn't see it coming.
Just one more seizure to add to the five hundred thousand already had? I suppose. His body temperature went down so I covered him with a blanket after cleaning him  of the excess, escaped urine. He lay limp, unconscious. His heart rate dropping from the diazepam but the oxygen monitor never even once sounded an alarm .


  1. I really hope that this is just a blip on the radar screen and that when Segev awakes from a healing sleep, he will be very well. Sometimes a bit of diazepam (valium) for both son and father assists in these transitional adventures. I do know that it periodically helps me cope with my catastrophic thinking. I will keep you guys in my thoughts as always. I am happy the stats appear good. Blessings.....

  2. ((()))Keeping you and yours in my thoughts.

  3. I am so sorry. I find that Sophie has some very good days or even an exceptional few hours leading up to moments of utter awareness and then BANG -- the huge mother of seizures. It's as if her brain is working perfectly and then "remembers" its dysfunction.

    I am so sorry.

  4. If only those good times could last a bit longer.