November 16, 2011

Day 5000

Changing his shirt on my bed is difficult because Segev is sensitive to the cool air of the bedroom. His diaper has leaked as always, due to poor construction, and the goosebumps on his skin make me hurry. But then as i change his diaper he coughs and the suction must be reached instantly and put to use to stop the phlegm from building pressure in his throat which then causes him to vomit.
The shirt comes off with difficulty since his dislocated left shoulder sometimes pops painfully in and out of place with the odd angle of extracting his arm from the sleeve and further causes struggling as it becomes entangled in his two neck collars. 
I put him in his wheelchair. What do I need to take with me from the bedroom? What am I forgetting?
"Alright Segev, let's go. Now we can start the morning, properly, not like this  broken night ."

6 comments:

  1. We should pride ourselves at the proficiency with which we undertake these tasks. Not only do I find it physically challenging for myself but I am sometimes impressed by the ingenious methods I have developed to make dressing and undressing as pleasant as possible for Royce. He doesn't always appreciate my gentle and encouraging pulls and probes but I know I'm making the process as nice as I can. Will my physical strength hold out? Only time will tell. I'm not giving up in a hurry.

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  2. I wish very much thay you'll find the time and energy to come out of the "blog closet" Marcelle. You're much needed.

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  3. I sure understand the "changing the shirt syndrome". Adam has rigid contractures in elbows and wrists and putting a long sleeve shirt on him is a major undertaking. I won't even go into crappy designed diapers...we have to put two on to contain whatever and even that protocol leaks...agrhhhhh! BTW, your new blog background far outshines my changes. I'll have to learn, but at almost 64 years old the olde neurons fire more slowly.
    Also, I would love to encourage Marcelle to join the blogging world...always interested in her comments,

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  4. Dear Eric,

    Love the look of your blog, you and Phil are putting me to shame :)

    Sorry I haven't been about, we were on a whilwind last week, did a planes trains and automobiles stint.. but at least I didn't break the car seat lol!

    Oatie is smaller but so agree on Diaper design... WHY don't they get someone to actually design a proper on. Oatie's dad on our way to the airport mistakenly at 5am put on 2 diapers, it worked a treat on the plane... so I did the same on the way home.

    Not being a super seamstress... but I do make stretch figure skating pants, tops etc etc for my older two.... and they do stay together :)

    Not having got to that stage yet with Oatie.... but is there suitably designed long sleeved clothing on our special boys?

    Well I ask, as I really haven't found much on special clothing... well none that isn't dungarees....

    Well, no scoffing,... but in my "spare time" I would be happy to sew something for Sergev and Phil's Adam if that would help :), or adapt a normal item of clothing.

    Just an idea... maybe poppers for the sleeves or a soft zip on each arm (like where the seam is).

    I have to say it's Jeans with me... and Oatie... he LOVES them but it's a challenge to get them on sometimes especially after swimming.

    Love

    Mel
    xxx

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  5. Mel thank you for the offer, that is very thoughtful. Unfortunately anything with a zipper of any kind or buttons are out of the question with Segev. The problem is not actually the clothing, the problem is what happens when you try to put clothing on flailing arms or a coughing boy. Velcro also would press on his skin and is cumbersome. Oversized clothing is the best bet. But the post is also about putting your best foot forward eventhough the night was terribly difficult and thus there being little distinction between the two. Good to see you back.

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  6. Dear Eric,

    You're most welcome, but if I can ever help out in sewing something for Sergev something that he could be comfortable in just let me know, it's an open offer xox

    Eric, it's nice to be back. Give a super hug to Sergev for me x and one for you too.

    Love

    Mel
    xxx

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