February 12, 2015

With the coming of morning, all fires die out



As some know, I am on call twenty four hours a day, seven days a week. For the last five years caring for my son has meant that about 90 hours a week I am no more than two arm lengths away from him, night and day. This is due to the fact that five years ago I made the decision to significantly reduce the amount of time I physically take care of him, as I was no longer able to properly function under the strain of 72 or even 96 hour shifts. Help from outside, whether family, friends or healthcare workers was not forthcoming. Those hours are now once again in flux since Segev's condition is certainly not improving